ACT Legislative Assembly

Paper petition

Subject:New born Screening for Severe Combined Immune Deficiency
Eligibility:ACT residents
Sponsoring Member:Ms Le Couteur
Num of Signatures:564
Referred to Minister11/02/2020
Responded To:Yes

Information about the Principal Petitioner is available through the sponsoring Members of the Legislative Assembly contact details.
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TO: The Speaker and Members of the Legislative Assembly
This petition of residents of the Australian Capital Territory draws to the attention of the Assembly: the infant mortality of Severe Combined Immune Deficiency (SCID). SCID is a life-threatening condition that without early diagnosis and treatment results in death within the first few months of life.
Your petitioners therefore request that the Assembly calls on the Government to: introduce the inclusion of screening for Severe Combined Immune Deficiency (SCID) into the existing Newborn Screening (Guthrie test) to reduce preventable infant mortality. Inclusion in the Newborn Screening test would enable early detection, diagnosis and lifesaving treatment for these babies. This is already standard practice in New Zealand, most US states and other OECD countries.

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